Diabetes
in Children and Adolescents
Knowledge Path
Knowledge Path Table of Contents
IntroductionResources on Specific Aspects of Diabetes Care
- Children and Youth with Special Health Care Needs
- Community Services Locator
- Health Insurance and Access to Care for Children and Adolescents
- Medications
- Nutrition
- Overweight and Obesity
- Physical Activity
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This knowledge path about diabetes in children and adolescents has been compiled by the MCH Library at Georgetown University. It offers a selection of current, high-quality resources for professionals (health professionals, program administrators, and researchers) about diabetes prevalence, diagnosis, management, type 2 diabetes prevention, and pediatric diabetes research. Separate sections present resources about medications and monitoring and nutrition. Separate briefs point to resources for families and schools. This knowledge path will be updated regularly.
See Overview of Diabetes in Children and Adolescents (rev. ed.) (2008). This fact sheet from the National Diabetes Education Program describes types of diabetes; prevalence, diagnosis, treatment, and management of diabetes in children and adolescents; monitoring complications; visiting the health care team; helping children and adolescents manage diabetes; and type 2 diabetes prevention strategies.
- Agency
for Healthcare Research and Quality
(AHRQ).
Provides evidence-based information
on health care outcomes; quality;
and cost, use, and access. Links
to evidence
reports and research findings about
children and adolescents with diabetes.
Presents a collection
of tools for
states to assess the quality of
diabetes care and create
quality-improvement strategies.
Offers access to the Healthcare
Cost and Utilization Project (HCUP),
the National
Guideline Clearinghouse, and
the National Quality
Measures Clearinghouse.
- American
Association of Diabetes Educators (AADE).
Presents practice documents, education
programs and webinars, and research and
meeting information for diabetes educators.
- American
Diabetes Association (ADA): Professional
Resources Online.
Presents
practice guidelines; conference and
continuing-education information, materials,
and webcasts; a research
database; consumer-education
tools, including posters about
children and type 2 diabetes;
and several electronic
newsletters.
- Centers
for Disease Control and Prevention (CDC).
Offers resources and initiatives about
diabetes in children and adolescents
that include
Diabetes Public Health Resource. Offers conference and program information, including information about state-based diabetes prevention and control programs and information about diabetes projects that focus on specific geographic areas or populations. Includes data, Spanish-language resources, and diabetes-related news.
Guide to Community Preventive Services: Diabetes Prevention and Control. Contains recommendations for selected population-based interventions addressing diabetes prevention and control that focus on health-care-system interventions and self-management education.
- Healthy People
2020. Information about this national health-promotion and disease-prevention
initiative of the Department of Health and Human Services. View the overview, objectives, and recommended interventions and resources for diabetes.
- Indian
Health Service (IHS): Division of Diabetes
Treatment and Prevention.
Provides program, grants, and training
information and resources about preventing
and controlling diabetes in American
Indians and Alaska Natives. Offers
a set of best
practice approaches for
diabetes treatment and prevention.
- Juvenile
Diabetes Research Foundation (JDRF).
Presents resources about research leading
to a cure for type 1 diabetes, including abstracts
of JDRF-funded research; grant
information and applications; electronic newsletters; and information
about new treatments, clinical
trials,
and JDRF-funded research centers and
initiatives.
- National
Diabetes Education Program (NDEP).
Presents clinical practice tools,
patient-education materials, and an electronic
newsletter about
diabetes prevention and management. Offers
a set of slides with U.S. diabetes prevalence
and incidence
rates broken down by age, gender,
and race and ethnicity. NDEP is a joint
effort between the Centers
for Disease Control and Prevention (CDC) and
the National
Institutes of Health (NIH).
Resources include
Making Systems Changes for Better Diabetes Care. Provides models and tools to help health professionals improve diabetes prevention, diagnosis, and treatment.
- National
Disease Research Interchange (NDRI):
Human Biological Data Interchange.
Presents information about this initiative
to collect medical history and genealogical
data on
over 6,700 families who are affected
by type 1 diabetes and to maintain a repository
of DNA and immortalized
cell
lines collected from 500 families. The
database and repository are available to
help researchers uncover the genetic causes
of type 1 diabetes and to study
type 2 diabetes, diabetic complications,
autoimmune diseases, kidney disease, and
other disorders. NDRI is supported by the National
Institutes of Health (NIH).
- National
Institute of Diabetes and Digestive
and Kidney Diseases (NIDDK): Diabetes
Research.
Presents information about diabetes
research funded by NIDDK, including
clinical research, diabetes research
centers, committees and advisory
groups, and conferences.
- SEARCH
for Diabetes in Youth.
Describes this multi-center study focusing
on children and adolescents with diabetes
in the United States. The study aims
to examine diabetes prevalence, how
type 1 and type 2 diabetes differ,
diabetes complications, types of care
and treatment available, and quality-of-life issues.
Includes contact information for the
six clinical
centers
participating in the study. SEARCH
is funded by the Centers
for Disease Control and Prevention
(CDC) and
the National
Institute of Diabetes and Digestive
and Kidney Diseases (NIDDK).
Additional Electronic Publications
- Cauchi R, Chung Y, Thangasamy
A. 2009. Providing
Diabetes Health Coverage: State Laws and
Programs (rev. ed). Washington, DC: National
Conference of State Legislatures. [Report].
- Gold MR, Briefel R. 2007. Study
of Federal Spending on Diabetes:
An Opportunity for Change. Washington, DC: Mathematica
Policy Research, Inc. [Report].
See the following set of MCH Library resource briefs to identify additional data and statistics, literature and research, and programs about diabetes in children and adolescents.
- Maternal and Child Health Data and Statistics
- Maternal and Child Health Literature and Research Databases
- Maternal and Child Health Programs Databases
- American
Diabetes Association (ADA): Diabetes
eNewsletters.
Offers a collection of electronic newsletters
for diabetes news, events, book
information, and advocacy. One weekly
newsletter is tailored for health care
professionals.
- Juvenile
Diabetes Research Foundation (JDRF).
Presents two electronic newsletters about
research on type 1 diabetes: Research
Frontline and Emerging Technologies in
Diabetes Research.
- National
Diabetes Education Program (NDEP): News & Notes. This monthly electronic newsletter offers information about new products and activities from NDEP.
- See the MCH Library family resource brief Diabetes in Kids and Teens.
- See the MCH Library school resource brief Diabetes.
Resources on Specific Aspects of Diabetes Care
- American
Diabetes Association (ADA): Treatment
and Care.
Presents information for families
about blood glucose control; insulin,
other injectable medications, and
oral medication; transplantation,
including islet cell transplants;
emergency preparedness; flu and pneumonia
shots;
and working
with the health care team.
- Food
and Drug Administration (FDA).
Contains information about medical
devices, including glucose
testing devices,
and drug products. Also
provides news about
product approvals, safety, and recalls.
- KidsHealth
Diabetes Center: Medications and
Monitoring. Presents
information in English and Spanish
for parents, teens, and kids about the importance
of diabetes control, helping kids deal with injections and blood tests, how to give an insulin injection, medicines for diabetes, and monitoring blood sugar. Includes a blood glucose record.
- MedlinePlus:
Diabetes Medicines.
Links to information
about diabetes medicines in English,
Spanish, and several other languages.
Also see MedlinePlus: Islet
Cell Transplantation.
- See the MCH Library resource brief Medications.
- AGRICOLA
(AGRICultural OnLine Access).
Contains bibliographic information for
agricultural literature including many
child and adolescent nutrition publications.
AGRICOLA is organized into two data sets
(books and journal articles). To identify
books or articles on the topic, click
on Keyword Search. Enter the term, diabetes.
In the next row, enter children adolescents and
select
"any of these" and "Keyword Anywhere" in
the two fields to the right. Click on Search.
AGRICOLA is a service of the National
Agricultural Library (NAL).
- American
Diabetes Association (ADA): MyFoodAdvisor.
Presents a calorie and carbohydrate counting
tool that can help with diabetes management
and nutrition.
- KidsHealth
Diabetes Center: Diabetes and
Nutrition. Presents
information in English and Spanish
for parents, teens, and kids about carbohydrates,
sugar, eating out, meal plans, and weight
management. Includes a food diary and
recipes.
- National
Nutrient Database for Standard Reference.
Lists the nutrients for more than 7,000
food items. Each item can be found in
any one of 23 food-group categories.
A portion-modifier option is also included.
The database is a service
of the Nutrient
Data Laboratory (NDL) at
the Agricultural
Research Service (ARS).
- Also see the National Diabetes
Education Program (NDEP) bilingual tip sheet, Tips
for Teens with Diabetes: Make
Healthy Food Choices/Consejos Para Jóvenes Con Diabetes: Come Alimentos Saludables (2009).
- Also see the knowledge paths, Nutrition
in Children and Adolescents and Overweight
and Obesity in Children and Adolescents.
- Children and Youth with Special Health Care Needs knowledge path, family resource brief, school resource brief
- Community Services Locator: An Online Directory for Finding Community Services for Children and Families knowledge path
- Health Insurance and Access to Care for Children and Adolescents knowledge path, family resource brief
- Medications resource brief
- Nutrition in Children and Adolescents knowledge path, family resource brief, school resource brief
- Overweight and Obesity in Children and Adolescents knowledge path, family resource brief, school resource brief
- Physical Activity and Children and Adolescents knowledge path, family resource brief, school resource brief
Diabetes in Children and Adolescents: Knowledge Path, 3rd ed.
(December 2009). (Updated: February 2012).
Author: Susan Brune Lorenzo,
M.L.S., MCH Library.
Reviewers: Amanda Carlton, R.N., Family for Keeps™ Transition
Care Program, Dream House for Medically Fragile
Children, Inc.; Malcolm Hill, M.D., Pediatrician; Jon Jantz, M.D., Pediatrician;
Tina Lavy, M.S., I.B.C.L.C.,
Sutter
County Women,
Infants and Children Program;
Olivia
K. Pickett,
M.A.,
M.L.S., MCH Library; Virginia
Smith, R.D., M.A., C.D.E.,
Leadership Education
in Adolescent Health program, Indiana University
School of Medicine, Riley
Hospital for Children.
Editor: Ruth Barzel, M.A., MCH Library.
