Infant
Mortality and Pregnancy Loss
Knowledge Path
June 2009
Draft
Introduction
This knowledge path
about infant mortality and pregnancy loss has been
compiled by the Maternal
and Child Health Library at
Georgetown University. It offers a selection
of recent, high-quality resources that
analyze data, report
on
research
aimed at identifying
causes and promising intervention strategies,
and describe risk-reduction
efforts as well as bereavement-support
programs. Separate sections identify
resources on factors that contribute
to infant mortality and pregnancy loss:
birth defects,
injuries, low birthweight and
prematurity,
and safe sleep environment. This knowledge
path for health professionals, policymakers,
researchers,
and families
will be updated periodically.
Related topics: Please see
the knowledge paths, Preconception
and Pregnancy
and Racial
and Ethnic Disparities in Health. Also
see the Community
Services Locator: An Online Directory for
Finding Community Services for Children
and Families.
Overview
See the set of definitions presented by the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource
Center,
which describes the terms often associated
with infant mortality and pregnancy
loss.
Also see the National Center
for Health Statistics (NCHS) report,
Infant
Mortality Statistics from the 2005 Period
Linked Birth/Infant Death Data Set (2008),
which presents infant mortality rates by
race and ethnicity, leading causes of death,
infant characteristics
such as birthweight, and maternal factors
such as receipt of prenatal care. The data
brief, Fetal
and Perinatal Mortality, United States,
2005 (2009) presents data and examines
trends in pregnancy loss.
See the Department of Health and Human
Services fact sheet, Preventing
Infant Mortality (rev. ed.) (2006), which describes
the problem of infant mortality in
the United States and federal efforts
to reduce mortality risks.
Resources for Professionals
Web
Sites: A-Z
- Association
of Maternal and Child Health Programs
(AMCHP): Infant Mortality.
Offers information and resources
about its programs to help state
public health agencies and communities address infant mortality. Recent
publications include
AMCHP
Partners with CityMatCH and NHSA to Eliminate Disparities in Infant Mortality.
(2008). [Newsletter article].
Investigating
Troubling Trends: A Report of the AMCHP/CDC State Infant Mortality Collaborative. (2007). [Report].
State-Local
Teams Chosen to Participate in Partnership to Eliminate Disparities in Infant
Mortality. (2008). [Press release].
- Association
of SIDS and Infant Mortality Programs
(ASIP).
Hosts information about the National
Sudden and Unexpected Infant/Child
Death and Pregnancy Loss Project
IMPACT, which is part of a
national consortium of four centers
supported
by the
Maternal and Child
Health Bureau (MCHB) to address
infant mortality and pregnancy
loss. Offers contact
information for
state Maternal and Child Health
(MCH) and Sudden and Unexpected
Infant Death (SUID) programs; a listserv to
support state and local infant-mortality
and risk-reduction programs; a
nationwide calendar of events
related
to sudden infant death syndrome
(SIDS), SUID, infant mortality,
and safe
sleep environments; and resources
for infant-death
risk reduction
and bereavement support.
Project IMPACT serves as the communications
hub for a national network of fetal,
infant, and child mortality programs
by convening,
connecting, and providing technical support to state and local efforts. Also
see the ASIP bibliography about
grief and bereavement.
- Centers
for Disease Control and Prevention
(CDC).
Offers resources and initiatives
aimed at reducing infant mortality
and pregnancy loss that include
CDC's Division
of Reproductive Health: Maternal
and Infant Health.
Contains links to reports, data,
and other resources about promoting
healthy pregnancy and infant
health and preventing premature
birth and infant
illness
and
mortality,
including SIDS
and SUID.
Recent publications
and initiatives include
CDC's
Morbidity & Mortality Weekly Reports (MMWR).
Presents data based on weekly reports to CDC
by state health departments. Recent reports
about infant mortality and pregnancy
loss include
- Apparent
Disappearance of the Black-White Infant Mortality
Gap—Dane County, Wisconsin, 1990-2007. (2009).
- QuickStats:
Fetal Mortality Rates,
by Period of Gestation—United States,
1990-2005.
(2009).
- QuickStats:
Infant Mortality Rates
for 10 Leading
Causes of Infant Death—United States, 2005.
(2007).
-
QuickStats:
Infant, Neonatal, and
Postneonatal Annual
Mortality Rates—United States, 1940-2005.
(2008).
- QuickStats:
Preterm-Related Infant Mortality Rates, by
Race/Ethnicity of Mother—United States,
2000 and 2005.
(2008).
CDC's National
Center for Health Statistics (NCHS).
Includes national data about infant
mortality and pregnancy loss. Recent
publications include
CDC's Racial
and Ethnic Approaches to Community
Health Across the U.S. (REACH U.S.).
Describes this initiative that
supports community coalitions in
designing, implementing, and evaluating
community-driven strategies to
eliminate health disparities in
eight priority areas, one of which
is infant mortality.
Also see CDC's Pregnancy Risk Assessment
Monitoring System
(PRAMS), the National
Center on Birth Defects and Developmental
Disabilities (NCBDDD), and
NCBDDD's brochure for health professionals
about stillbirths.
- CityMatCH.
Contains tools and resources for implementing
the Perinatal Periods of Risk (PPOR)
approach for mobilizing communities
to reduce feto-infant mortality in
U.S. cities. PPOR is a joint initiative
of CityMatCH, the Centers
for Disease Control and Prevention
(CDC), the March
of Dimes (MOD),
and the Maternal
and Child Health Bureau (MCHB).
- Eunice
Kennedy Shriver National Institute
of Child Health
and Human
Development (NICHD).
Contains research and grant information,
publications, and other resources
for health professionals, researchers,
and families about pregnancy and
infant and child health topics,
including pregnancy loss, birth
defects, prematurity, and infant
mortality. Reports describe
the research and training
supported by NICHD's Pregnancy
and
Perinatology Branch to improve the outcomes of pregnancy, reduce infant mortality,
and minimize maternal and infant morbidities. Also see the Back
to Sleep Campaign.
- First
Candle.
Hosts information about the National
Sudden and Unexpected Infant/Child
Death
and Pregnancy Loss Program Support
Center, which is part of a
national consortium of four centers
supported
by the
Maternal and Child
Health Bureau (MCHB) to address
infant mortality and pregnancy
loss. Provides a hotline in
English and Spanish for expectant
and new
parents
on ways to help their infants survive
and thrive, for parents who have
experienced the death of an infant,
and for professionals working with
families.
Offers education and training materials for health and human services professionals,
including program manuals, PowerPoint presentations, information about public-education
campaigns, and annotated citations
for research articles. Some materials
are available in Spanish. Also
see First Candle's resources about infant
mortality risk reduction, bereavement,
and safe
sleep environments.
- Healthy
People 2010.
Offers information and publications
about this national health-promotion
and disease-prevention initiative
that is coordinated by the Office
of Disease Prevention and Health
Promotion (ODPHP). View the
maternal, infant, and child health focus
area to
learn about
the objectives related to infant
mortality and pregnancy loss.
See Data2010 for
data about the objectives and
the HP2010
Information Access Project for
access to published literature
related to the objectives.
Also
learn how to participate in the
development of Healthy
People 2020.
- Joint
Center for Political and Economic
Studies:
The Courage to Love Commission. Presents papers, PowerPoint
presentations, and fact
sheets from this initiative that analyzed racial and ethnic
disparities in infant mortality.
Papers include
Inequality
Matters: Infant Mortality
in the Global Village. (2007).
Maternal
Nutrition and Infant Mortality in the Context of Relationality. (2007).
Race,
Stress, and Social Support: Addressing the Crisis in Black Infant Mortality. (2007).
- March
of Dimes (MOD).
Contains resources for health professionals
and expectant and new parents in English and Spanish
about preconceptional and prenatal
care, birth defects, pregnancy loss, prematurity,
bereavement, and how to get involved
in improving infants' health by reducing
the incidence of birth defects
and infant mortality. Offers perinatal statistics (including
infant mortality rates),
continuing-education modules,
medical reference information, and video and audio resources.
- Maternal
and Child Health Bureau (MCHB).
Describes MCHB's projects and initiatives on
behalf of America's women, infants, children,
adolescents, and their families. Initiatives
include Healthy
Start, a program to address factors
contributing to infant mortality, low birthweight,
and other adverse perinatal outcomes in high-risk
populations. MCHB's National
Sudden and Unexpected Infant/Child Death and
Pregnancy
Loss Cooperative Agreement Program is a national
consortium of four centers: (1) National
Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center at
Georgetown University, (2) National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Program Support Center at First Candle,
(3) National Sudden and Unexpected
Infant/Child Death and Pregnancy Loss Project IMPACT at the Association
of SIDS and Infant Mortality Programs (ASIP), and (4) National
Sudden and Unexpected Infant/Child Death and Pregnancy Loss Project at the National
Center for Cultural Competence. Resources about
infant mortality and pregnancy loss include
Evidence
of Trends, Risk Factors, and Intervention Strategies: A Report from the Healthy
Start National Evaluation 2006—Racial and Ethnic
Disparities in Infant Mortality. (2008). [Report].
Improving Infant
Death Investigation through Doll Re-Enactment. (2009). [Archived Webcast].
Infant
Mortality Reduction: Interconception Care In Michigan. (2008). [Archived Webcast].
Let’s
Make It Easy While Getting the Most from Your Hard Work on Child Death Review
Reporting. (2009). [Archived Webcast].
Profile of Healthy Start: Findings from
Phase I of the Evaluation 2006. (2008). [Report].
Sudden
Unexpected Infant Death (SUID): National
Developments, Initiatives, Studies
and Opportunities. (2009). [Archived Webcast].
Also see the Maternal and Child Health Bureau (MCHB) Hotline, Maternal
and Child Health Library, the Title
V Information System, and the Discretionary
Grant Information System (DGIS).
- National
Center for Cultural Competence
(NCCC).
Hosts information about the National
Sudden and Unexpected Infant/Child
Death and Pregnancy
Loss Project, which is part of a national consortium of four centers supported
by the Maternal
and Child Health Bureau (MCHB) to address infant mortality and pregnancy
loss.
Provides technical assistance and develops
resources on cultural and linguistic
competence to help programs effectively
address racial and ethnic
disparities in perinatal, infant,
and child mortality and pregnancy
loss. Resources include
a set of promising
practices for
cultural and linguistic competence
in addressing SIDS/infant death (ID), training
materials, a literature
review, a self-assessment checklist,
a consultants
list, and links to
related resources about cultural
competence
and infant
mortality. Information is available
in English and Spanish. Recent
publications include
Building
Integrated Systems to Address Sudden
Unexpected Infant Death. (2007). [Report].
- National
Fetal and Infant Mortality Review
Program (NFIMR).
Contains a wealth of resources
for implementing the fetal and
infant mortality review (FIMR)
method, including a directory of
state and community FIMR projects,
program descriptions,
data-abstraction
forms, sample laws to implement
and safeguard FIMR proceedings,
and
an online
discussion group.
NFIMR is a collaborative effort
between the American
College of Obstetricians and Gynecologists
(ACOG) and
the Maternal
and Child Health Bureau (MCHB).
In addition to a bibliography about
grief and bereavement, recent publications
include
Fetal
and Infant Mortality Review Manual:
A Guide
for Communities (2nd ed.).
(2009). [Manual].
- National
Healthy Start Association (NHSA).
Describes the Healthy Start program
and provides general information
about infant mortality, low-birthweight
infants, and racial disparities
in perinatal outcomes. Includes
a directory of Healthy Start programs
nationwide and a newsletter.
Funded by the Maternal
and Child Health Bureau (MCHB),
Healthy Start provides community-based,
culturally competent, family-centered,
comprehensive perinatal health
services to women, infants, and
their families in communities with
very high rates of infant mortality.
Also see the Maternal and Child
Health Library's Healthy
Start Collection Database for
a catalog of materials developed
by Healthy Start programs.
- National
MCH Center for Child Death Review.
Describes the child death review
process for infants, children, and adolescents from birth through age 18;
offers tools for child death review
teams; provides state program
information; and presents child
mortality data
by
state.
The center is funded by
the Maternal
and Child Health Bureau (MCHB).
- National
Sudden and Unexpected Infant/Child
Death and Pregnancy Loss Resource
Center.
Presents
a wealth of resources for health and
human service professionals, including
first responders and child
care providers, as well as for families
about risk reduction and bereavement
for
pregnancy loss and sudden and unexpected
infant and child death. The center
is
part of a national consortium of
four centers supported
by the Maternal
and Child Health Bureau (MCHB) to address infant mortality and pregnancy
loss. Resources include
fact sheets, bibliographies,
statistics,
Spanish-language
materials, a multimedia
collection, a resource
database, journal
article summaries, and most
recently:
First
Candle's 2009 Research and Advocacy Symposium:
Multimedia Proceedings. (2009).
These podcasts are presented collaboratively
with
First Candle.
Training Toolkit. (2009).
Also see the center's resources about bereavement and safe sleep
environments,
and the MCH Alert.
- Office
of Minority Health: Infant Health.
Contains statistics about infant
mortality among racial and ethnic
groups and a fact sheet
and list
of links to publications and Web
sites about infant mortality. Initiatives
include
A Healthy Baby Begins with
You.
Presents information
about this national print
and radio campaign
to
raise awareness about
infant mortality
with an emphasis on the African-American
community. Includes campaign
materials and
infant mortality disparities fact
sheets. Also presents
information about
another phase of the
campaign,
the Preconception
Peer Educators (PPE)
Program, which
is designed to educate
the college-age population
about preconception
health and care and
to train them to serve
as
ambassadors
for their
peers who are not
attending college.

Additional
Electronic Publications
- Center for Health
Care Strategies. 2007. Collaborating
to Improve Birth Outcomes
in New Jersey: A CHCS Project
Spotlight. Hamilton, NJ:
Center for Health Care Strategies.
This report profiles the
experiences and lessons
learned from the New Jersey
Collaborative to Improve
Birth Outcomes and Health
Status of Children.
- Egerter S, Braveman P, Pamuk E, Cubbin C, Dekker
M, Pedragon V, Sadegh-Nobari
T. 2008.
America's
Health Starts with Healthy
Children: How Do States
Compare? Princeton,
NJ: Robert
Wood Johnson Foundation
Commission to Build a Healthier
America.
This chartbook
examines state and national
data on two widely used
measures
of child
health: infant mortality and children's general health status
to document how healthy
our nation's children are
now and how healthy they
could be if we as a nation
were realizing our full
health potential.
- Jocson M, Ramstrom K, Nettesheim-Engel
K. 2007. Survey
of California Fetal Infant Mortality Review Programs.
Sacramento, CA:
California Department of Public
Health.
This report describes the results of a survey of California FIMR coordinators
about the structure of current California FIMR programs, gaps
in the FIMR process, and support and training needs.
- Kids Count, Voices
for Virginia's Children. 2007. Infant
Mortality: Understanding the
Complexities of Death Among
Virginia's Youngest Children. Richmond,
VA: Voices for Virginia's
Children.
This data brief describes infant
mortality rates in Virginia
and examines its causes
and risk factors.
- Levi J, Cimons M, Johnson K. 2008. Healthy
Women, Healthy Babies. Washington, DC: Trust
for America's Health (TFAH). This
report identifies issues and obstacles facing
the United States in promoting
preconception care, and it recommends
actions to improve
women's health and thereby ensure
healthier infants.
- Missouri
Department of Social Services, State
Technical Assistance Team.
2007. Preventing
Child Deaths in Missouri:
The Missouri Child Fatality
Review Program Annual Report
for 2006. Jefferson
City, MO: Missouri Child Fatality
Review Program, Missouri
Department of Social Services.
This report provides information
about the Missouri Child Fatality
Review Program, confidentiality
issues, different categories
of child fatalities, findings
related to infant deaths,
fetal and infant mortality review,
and SUIDs.
- National
Conference of State Legislatures
(NCSL).
2009. Sudden Infant Death
Syndrome (SIDS): State Laws (rev. ed). Washington,
DC: National Conference of State
Legislatures. This compilation lists
states with laws related to SIDS
and offers a brief description of
each law with links to more detailed
information.
- Saenz R. 2007. Growing Color Divide in U.S. Infant Mortality.
Washington, DC: Population
Reference Bureau. This brief describes
racial disparities in infant mortality.
- UNICEF.
2009. The
State of the World's Children 2009.
New York, NY: UNICEF. Table
1: Basic indicators contains
infant mortality rate comparisons by
country.

Databases
The databases listed below
are excellent tools for identifying data,
additional literature
and research,
and programs addressing
infant mortality and pregnancy loss.
Many of the entries below contain tips
on
how
to
use the
databases efficiently. Please note that
databases vary in how terms should be
entered; for example, some require quotation
marks and others don't. Enter search
phrases as shown in bold below.
- Data
- Community
Health Status Indicators (CHSI).
Presents county-specific data on
health status indicators obtained
from a variety of federal agencies
including the Department of Health
and Human Services, the Environmental
Protection Agency, the Census Bureau,
and the Department of Labor. Use
the indicators to compare a county
with counties similar in population
composition and selected demographics
and to characterize the overall health
of a county and its citizens to support
health planning. Select a state and
county and click on Display Data.
Select Measures of Birth and Death to
view birth measures and infant mortality
rates. CHSI is a service
of the Department
of Health and Human Services (DHHS).
- Data2010:
The Healthy People 2010 Database.
Contains the most recent monitoring
data for tracking Healthy
People 2010.
To obtain data about infant mortality
and contributing factors, click
on the field, Data by Focus Area.
Under the field, Select a Focus
Area, choose 16 - Maternal, Infant,
and Child Health from the pop-up
menu. Next, click on the button
for Include Related Objectives
From Other Focus Areas in the Table.
Click on the Submit button. This
data set is provided by the National
Center for Health Statistics (NCHS) via CDC
Wonder.
- Health
Data for All Ages.
Presents interactive online data
tables on pregnancy and birth,
health conditions and risk factors,
health care access and use, and
mortality. Infant, neonatal, and
postneonatal mortality data and
data about preterm birth and low
birthweight are presented.
This data warehouse is a service
of the National
Center for Health Statistics (NCHS).
- KIDS
COUNT Data Center.
Contains information about this
national and state-by-state effort
to track the status of children
in the United States. Generate
custom graphs, maps, ranked lists,
and state-by-state
profiles of birth outcomes, among
other child health indicators. KIDS
COUNT is a project of the Annie
E. Casey Foundation (AECF).
- Linked
Birth/Infant Death Data Set.
Contains data about infant births/deaths
occurring
within the United States to U.S.
residents. Data are available by
county of mother's residence, infant's
age, underlying cause of death,
gender, birthweight, birth plurality,
birth order, gestational age at
birth, period of prenatal care,
maternal race and ethnicity, maternal
age, maternal education, and marital
status. This data set is provided
by the National
Center for Health Statistics (NCHS) via CDC
Wonder.
- PeriStats.
Provides access to maternal and infant
health-related data at the national,
state, county, and city level by aggregating
data from several government agencies
and organizations. Topics include the
timing
and frequency of prenatal care, preterm
birth, low birthweight, infant mortality,
tobacco use, and health insurance coverage.
Over
60,000 graphs, maps, and tables are
available, and data are referenced
to the relevant source. PeriStats is
a service of the March
of Dimes.
- Pregnancy
Risk Assessment Monitoring System (PRAMS).
Presents state-specific, population-based data
on maternal attitudes and experiences before,
during, and immediately following pregnancy.
PRAMS is a surveillance project of the Centers
for Disease Control and Prevention (CDC) and
state health departments.
- State
Health Facts Online.
Contains state-level data on
more than 500 health topics. View
individual state profiles, or compare
data
for all states by category. For
infant mortality data,
click on the Health Status category
and select one of several subcategories
under Infants. For data about low
birthweight and prematurity, click
on the Health Status category,
and select one of several subcategories
under Births. This
system is provided
by the Kaiser
Family Foundation.
- Title
V Information System (TVIS).
Contains data from annual Title
V Block Grant applications and
reports submitted by all 59 U.S.
states and jurisdictions. To identify
state efforts to reduce infant
mortality, conduct several searches:
(1) Select Program
Data for the Most Recent Year;
scroll to Medicaid/Non Medicaid
Comparison and select
Infants deaths per 1,000 live births;
select a state and Annual Report
Year; and click on Start Search.
(2) Select Measurement
and Indicator Data; select
National Outcome Measures; select
Most Recent Year Available or Multi-Year
Report; select a state and
infant mortality measure; click
on Start Search. (3)
Select
Measurement
and Indicator Data; scroll to State
Data; select State Priority Needs
Keyword Search; select Keyword:
Morbidity/Mortality and Population:
Infants; click on Start Search.
(4) Select Measurement
and Indicator Data;
scroll to State
Data; select State Outcome Measures;
select Search By Keyword/Population;
select a state and Keyword: Morbidity/Mortality
and
Population:
Infants; click on Start Search.
(5) View State
Snapshots of Maternal and
Child Health for a summary of each
state's infant mortality data.
TVIS is a service of the Maternal
and Child Health Bureau (MCHB).
- VitalStats.
Presents tables, data files, and reports that
allow users to access and examine birth and
perinatal mortality data interactively. This
system is provided by the National
Center for Health Statistics (NCHS).
- Also see the Morbidity
& Mortality Weekly Reports (MMWR) and
the National
Center for Health Statistics (NCHS).
- Literature
and Research Databases
- ClinicalTrials.gov.
Provides access to information about
clinical research studies for a wide
range of conditions.
Included are a summary of the purpose
of the study, recruiting status, criteria
for patient participation, location
of the trial, and contact information.
To identify studies, click
on Search for Clinical Trials. Enter
the search phrase infant mortality
OR sudden infant death syndrome
and click
on Search to get your results. Conduct
another search by entering the search
phrase, pregnancy
loss OR stillbirth OR miscarriage. Click on Search to get your results. ClinicalTrials.gov is a service
of the National
Institutes of Health (NIH) and
is developed by the National
Library of Medicine (NLM).
- Cochrane
Reviews.
Presents systematic reviews of
health care interventions internationally.
Go to
the box, Search abstracts & summaries,
and type "infant mortality" OR "sudden infant death syndrome". Click
on Search Reviews to get your results.
Conduct
another search by entering the
phrase, "pregnancy loss" OR miscarriage OR stillbirth.
Click on Search Reviews to get
your results. Access to the full-text
article requires a subscription
that is available in many hospital
and university health sciences
libraries. The database is published
by the Cochrane
Collaboration,
an international nonprofit organization
based in the United Kingdom.
- Computer
Retrieval of Information on Scientific Projects
(CRISP). Contains
information about federally funded biomedical
research projects conducted at universities,
hospitals, and other research institutions.
Search CRISP to identify scientific concepts,
emerging trends and techniques, or specific
projects and/or investigators. To identify
projects on the topic, select Query
Form and conduct several
searches: (1) Type infant mortality
in the search term box and click on
Phrase. Click on Submit Query to get your results.
(2) Type sudden infant death syndrome in
the search term box and click on
Phrase. Click on Submit Query to get your results.
(3) Type pregnancy loss in
the search term box and click on Phrase. Click
on Submit Query to get your results. (4) Type miscarriage
stillbirth in
the search term box and click on Or. Click
on Submit Query to get your results. Narrow
your searches
by selecting a grant activity, fiscal year,
or state. The database is
maintained by the Office of
Extramural Research at the National
Institutes of Health (NIH).
- Database
of Abstracts of Reviews of Effects
(DARE).
Contains summaries of systematic
reviews that have met strict quality
criteria. Included reviews have
to be about the effects of interventions.
Each summary also provides a critical
commentary on the quality of the
review. Search the database by
typing "infant mortality" OR "sudden
infant death syndrome" in the
search box. Click on Search to
get your results. Conduct another
search by typing "pregnancy loss" OR miscarriage OR stillbirth in the
search box. Click on Search to
get your results. DARE is produced
and maintained by the Centre
for Reviews and Dissemination at
the University of York.
- HP2010
Information Access Project: Maternal,
Infant and Child Health.
Provides an automatic search mechanism
for published literature indexed
in PubMed related
to the Healthy
People 2010 MCH objectives
that include reducing fetal and
infant deaths. Also links to the
narrative for the objectives and
the complete chapter about MCH
in the text, Healthy
People 2010: Understanding and
Improving Health (2nd ed.) (2000).
This service is provided by the Partners
in Information Access for the Public
Health Workforce,
a collaboration of federal agencies,
public health organizations, and
health sciences libraries.
- Maternal
and Child Health Library at
the National
Center for Education in Maternal
and Child Health (NCEMCH),
Georgetown University. Maintains
several databases to collect, manage,
and disseminate knowledge about
MCH, with special emphasis on knowledge
gained from initiatives and programs
supported by the Maternal
and Child Health Bureau (MCHB).
The library's bibliographic databases
are
Healthy
Start Collection Database.
Comprises an online catalog
of over 2,000 items developed
by or used in Healthy Start
sites, including brochures,
bylaws,
curricula,
marketing materials, policies,
and national evaluation reports
along with other material related
to maternal and infant health.
Materials are classified according
to the nine Healthy Start models
of intervention that range from
community-based consortia to
risk prevention and reduction.
The Healthy Start Initiative,
established by MCHB
in 1991, provides community-based,
culturally
competent, family-centered,
and comprehensive perinatal
health services to women, infants,
and their families in communities
with very high rates of infant
mortality.
MCHLine®.
Comprises an online catalog of materials
in the Maternal and Child Health
Library. A selection of recent library
items is listed in the bibliography, Infant
mortality. For library items
about pregnancy loss, search MCHLine® by
typing "pregnancy loss"
in the keyword field of the database
search form. Click on
Search MCHLine
to get your results.
The Maternal and Child
Health Library also offers organizations
and programs databases. Also
see the library's newsletter, MCH
Alert: Tomorrow's Policy Today.
- National
Guideline Clearinghouse (NGC).
Contains evidence-based clinical
practice guidelines and related
materials for health professionals.
Identify guidelines by entering "infant
mortality" OR
"sudden infant death syndrome" in
the Search field. Click on Search
to get your results. Conduct another
search by entering "pregnancy loss" OR miscarriage OR stillbirth in the Search field. Click on Search to get your results.
The database is an initiative of
the Agency
for Healthcare Research and Quality
(AHRQ).
- National
Sudden and Unexpected Infant/Child
Death and Pregnancy Loss Resource
Center: Topics A-Z.
Offers links to electronic resources
collected from national, state,
and local SIDS/Infant Death programs,
as well as MCH organizations. The
resources include fact sheets,
brochures, booklets, posters, order
forms, foreign-language materials,
and multimedia formats.
- Native
Health Database.
Contains citations for health-related
articles, reports, surveys, and
other documents about the health
and health care of American Indians,
Alaska Natives, and Canadian First
Nations. To identify citations
on the topic, enter "infant
mortality"
OR "sudden infant death syndrome" in
the Keywords field. Click on Search
to get your results. Conduct another
search by typing "fetal death" in
the Keywords field. Click on Search
to get your results. The database
is a service of
the University
of New Mexico Health Sciences Library
and Informatics Center.
- PubMed.
Contains over 18 million citations
for biomedical articles that date back
to 1948. These citations are from
MEDLINE and additional life sciences
journals. PubMed includes links to
many sites providing full-text articles
and other related resources. To identify
citations on the topic, enter the search
phrase infant mortality OR sudden
infant death OR perinatal mortality. Then, click
on Limits and make the following selections
on the page: select a date (e.g. Published
in the last 2 years); click on Humans;
click on Languages: English; and select
Tag Terms: MeSH Major Topic. Selecting
Type of Article further limits the
search. Click on Go to get your results. Conduct another search by entering the search phrase fetal death OR stillbirth OR abortion, spontaneous. The limits established in the first search will remain in place for this search. Click on Go to get your results. PubMed is a service of the National
Library of Medicine (NLM).
- Programs Databases
- American Academy of Pediatrics (AAP):
Community Pediatrics Grants/Projects Searchable
Database. Comprises an archive of community
pediatrics grant projects. To identify projects,
select Topic: SIDS. Click on
Basic Submit to get your results. Conduct another search by scrolling to Keyword Search and entering the term, infant mortality.
Click on Keyword Submit to get your results.
- Discretionary
Grant Information System (DGIS).
Contains program and performance measure data
for more than 900 grants issued by the Maternal
and Child Health Bureau (MCHB). Conduct several
sets of searches to find grant information about
infant mortality and pregnancy loss. To identify
data about Healthy Start, an initiative to reduce
the rate of infant mortality and improve perinatal
outcomes, select Program Data, Healthy Start,
and a topic to complete the search. To identify
performance measure data for MCHB programs
about infant mortality and pregnancy loss, select
Performance
Measures; select Performance Measure (again);
scroll and click on a birthweight or mortality
measure; click on Next; select
a program; and click on Next to view data. To
search for abstracts of MCHB discretionary grants
about infant mortality and pregnancy loss, select
Abstracts; type infant mortality in
the search field; click on Exact phrase; and
click on Search to get your
results. Select Abstracts
Search again; type sudden infant
death syndrome in the search field;
click on Exact phrase; and click on Search to
get your
results. Select Abstracts
Search one more time; type miscarriage
stillbirth in the search field; click
on Any of the words; and click on Search to get
your results. To find out about
products and publications produced by MCHB training
grantees on the topic, select Program Data, Training,
and Search Products and Publications. Type infant
mortality in
the search field and click on Exact phrase.
Click
on Search to get your results. Select Publications Search to conduct another
search. Type sudden infant death syndrome in
the search field and click on Exact phrase.
Click
on Search to get your results. Select Publications Search one more time.
Type miscarriage
stillbirth in
the search field and click on Any of the words.
Click
on Search to get your results.
-
Health Services Research Projects in Progress (HSRProj).
Provides information about ongoing health services
research and public health projects. To identify
projects, enter infant mortality OR sudden
infant death OR perinatal mortality in the search box. Click on Search to get your
results. Conduct another search by entering fetal death OR stillbirth OR abortion, spontaneous in the search box. Click on Search to get your results. HSRProj is funded by the National
Library of Medicine (NLM).
- Maternal
and Child Health Library at
the National
Center for Education in Maternal
and Child Health (NCEMCH),
Georgetown University. Maintains
two databases to identify organizations
and programs that address infant
mortality and pregnancy loss:
MCH
Organizations Database.
Lists over 2,000 government,
professional, and voluntary
organizations involved in MCH
activities, primarily at a national
level. Organizations focusing
on infant mortality prevention
appear in a list produced
from the database. For organizations
about pregnancy loss, type "pregnancy loss"
in the keyword field of the database
search form. Click on Search
to get your results.
MCH
Projects Database.
Comprises an online catalog of
projects funded by the Maternal
and Child Health Bureau (MCHB) through October 1, 2004. To identify
projects that focus on the topic,
enter "infant mortality" in
the abstract field of the
database search
form. Click on Search to get
your results. Conduct additional
searches using the terms stillbirth and miscarriage. Several final
reports from
these projects are available online
and include Healthy Start
impact reports. See MCHB's Discretionary
Grant Information System (DGIS) for information on projects funded after October 1, 2004.
- National
Association of County and City
Health Officials (NACCHO): Model
Practice Database.
Contains information about model
and promising state and local public
health program practices. Search
by state or health topic. For effective
programs to address infant mortality
and pregnancy loss, select Model
Practice Database and choose Find
a model or promising practice by category. Click on Maternal and Child Health.

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