
Maternal and Child Health Library
This and past issues of the MCH Alert are available at http://www.mchlibrary.info/alert/archives.html.
January 9, 2009
Special Notice: In recognition of National Birth Defects Prevention
Month (January 2009), the National Birth Defects Prevention Network’s
Education and Outreach Committee has compiled an educational packet
containing materials with a special focus on obesity prevention and
weight management before, during, and after pregnancy. The materials in
the packet are from a variety of sources; they provide information
about obesity and how excessive weight gain can affect pregnant women
and their fetuses, and they identify opportunities for prevention.
Contents include pamphlets, posters, fact sheets, sample proclamations,
news releases, letters, and lists of other resources. Many of the
materials are available in English and Spanish. The packet is available
at http://www.nbdpn.org/current/resources/bdpm2009.html.
1. RAND's Promising Practices Network Features
Parent-Education Program
2. Children's Defense Fund Releases Report on Key Child
Data
3. Web Page Highlights Information on Health Issues
Collected by the National Conference of State Legislatures
4. Authors Examine Health Care Aspects of Transition to
Adulthood for Youth with Special Health Care Needs
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1. RAND'S PROMISING PRACTICES NETWORK FEATURES PARENT-EDUCATION
PROGRAM
The Parents as Teachers (PAT) program provides parents with child
development information and parenting support. RAND's Promising
Practice Network (PPN) on Children, Families and Communities recently
recognized it as a "program that works." PAT is a four-part
intervention model in which trained and certified parent educators
offer support to children and their families from pregnancy until the
child is 5 years old. Program services include home visits; child
health, hearing, vision, and developmental screenings; parent group
meetings; and a resource network that links families with needed
community resources. Studies have shown that PAT has proven effects on
the number of infants born weighing 5.5 lbs or more as well as on young
children's cognitive and physical development. The PPN Web site
contains a program overview as well as information on program
participants, evaluation methods, key evaluation findings, probable
implementers, funding, implementation detail, and issues to consider.
Example sites, contact information, a list of resources, and a
bibliography are also available at http://www.promisingpractices.net/program.asp?programid=88&ref=ppntext.
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2. CHILDREN'S DEFENSE FUND RELEASES REPORT ON KEY CHILD DATA
State of America's Children 2008 is a statistical compendium of
national and state-by-state data on children. The report, published by
the Children's Defense Fund, also includes comparisons of selected
child statistics from the United States and other industrialized
countries. Topics include child population, poverty and income, poverty
and race, health and health coverage, welfare, youths at risk,
education, child care and early childhood development, nutrition, and
housing. The press release, highlights, and full report are available
at
http://www.childrensdefense.org/site/PageServer?pagename=policyareas_stateamericaschildren_2008.
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3. WEB PAGE HIGHLIGHTS INFORMATION ON HEALTH ISSUES COLLECTED BY THE
NATIONAL CONFERENCE OF STATE LEGISLATURES
Health Policy Issues at NCSL, A-Z, presents information on state and
federal health issues studied and tracked by health programs and staff
at the National Conference of State Legislatures (NCSL). The A-Z list
provides access to information on legislative action in the states,
research and the effects on public policy, and state innovations by
topic. Each topic links to NCSL legislative reports and other
publications, presentation slides, audio conferences, and summaries of
past and upcoming meetings, as well as to non-NCSL publications,
articles, and communications. Some topics also link to an index of
articles published in NCSL's State Health Notes. The A-Z list is
available at http://www.ncsl.org/programs/health/healthissues.htm.
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4. AUTHORS EXAMINE HEALTH CARE ASPECTS OF TRANSITION TO ADULTHOOD FOR
YOUTH WITH SPECIAL HEALTH CARE NEEDS
"Solutions to improving the preparation for transition [to adulthood]
are needed at the patient and family, provider, and health system
levels," state the authors of an article published in the January 2009
issue of Pediatrics. The Title V program of the Social Security Act,
administered by the Maternal and Child Health Bureau (MCHB), provides
funding for specialized medical services for children with a range of
conditions and guidance to states on improving systems of care for
children and youth with special health care needs (CYSHCN). MCHB has
made the preparation for adulthood one of six core performance
outcomes, which together define a high-performing system of care for
CYSHCN. Two national surveys have been conducted to assess state and
national progress toward meeting core performance outcomes from
families’ perspectives. The first National Survey of Children with
Special Health Care Needs (NS-CYSHCN) was conducted in 2001 and the
second in 2005-2006. This article describes changes to the measurement
strategy for the transition core outcome since the 2001 survey and
reports national results on the transition core outcome and its
individual components using the 2005-2006 survey data. The authors also
identify factors associated with meeting the core outcome and its
components and discuss implications of the results for federal and
state planning and policy.
A total of 40,723 interviews with parents of CYSHCN were completed
during 2005-2006, including 18,198 with parents of youth with special
health care needs (YSHCN) ages 12-17. Parents of children without
special health care needs were surveyed for comparison, with a total of
1,862 parents of youth ages 12-17 responding to the entire survey. The
transition core outcome was calculated on the basis of the following
component measures: parent report of transition-related discussions
with their child’s health professionals about shifting to adult health
professionals, adult health care needs, and health insurance and parent
report that the child’s health professional usually or always
encouraged the child to take responsibility for his or her care. All
components were required to meet the overall core outcome.
The authors found that
- Overall, 41% of YSHCN met the transition core outcome.
- Forty-two percent of parents of YSHCN discussed shifting care to
an adult health professional, 62% discussed their child’s adult health
care needs with a health professional, and 34% discussed upcoming
changes in health insurance. The majority (78%) of respondents reported
that their child’s physician or other health professional usually or
always encouraged their child to take responsibility for his or her
health.
- Male gender, older age, non-Hispanic black or Hispanic race and
ethnicity, not speaking English in the home, and not having a medical
home were independently associated with increased odds of not meeting
the core outcome.
- Overall, the rates of meeting the transition core outcome did not
significantly differ between YSHCN and the referent sample.
"As in 2001, performance on the transition core outcome trails that of
the other MCHB outcome measures," the authors conclude, suggesting that
addressing “disparities in transition services is a high priority.”
Lotstein DS, Ghandour R, Cash A, et al. 2009. Planning for health care
transitions: Results from the 2005-2006 National Survey of Children
with Special Health Care Needs. Pediatrics 123(1):e145-e152. Abstract
available at http://pediatrics.aappublications.org/cgi/content/abstract/123/1/e145.
Readers: More information is available from the following MCH Library
resource:
- Children and Adolescents with Special Health Care Needs: Knowledge
path at
http://www.mchlibrary.info/KnowledgePaths/kp_CSHCN.html
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and
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