MCH Alert


Maternal and Child Health Library

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January 9, 2009

Special Notice: In recognition of National Birth Defects Prevention Month (January 2009), the National Birth Defects Prevention Network’s Education and Outreach Committee has compiled an educational packet containing materials with a special focus on obesity prevention and weight management before, during, and after pregnancy. The materials in the packet are from a variety of sources; they provide information about obesity and how excessive weight gain can affect pregnant women and their fetuses, and they identify opportunities for prevention. Contents include pamphlets, posters, fact sheets, sample proclamations, news releases, letters, and lists of other resources. Many of the materials are available in English and Spanish. The packet is available at http://www.nbdpn.org/current/resources/bdpm2009.html.

1. RAND's Promising Practices Network Features Parent-Education Program
2. Children's Defense Fund Releases Report on Key Child Data
3. Web Page Highlights Information on Health Issues Collected by the National Conference of State Legislatures
4. Authors Examine Health Care Aspects of Transition to Adulthood for Youth with Special Health Care Needs

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1. RAND'S PROMISING PRACTICES NETWORK FEATURES PARENT-EDUCATION PROGRAM

The Parents as Teachers (PAT) program provides parents with child development information and parenting support. RAND's Promising Practice Network (PPN) on Children, Families and Communities recently recognized it as a "program that works." PAT is a four-part intervention model in which trained and certified parent educators offer support to children and their families from pregnancy until the child is 5 years old. Program services include home visits; child health, hearing, vision, and developmental screenings; parent group meetings; and a resource network that links families with needed community resources. Studies have shown that PAT has proven effects on the number of infants born weighing 5.5 lbs or more as well as on young children's cognitive and physical development. The PPN Web site contains a program overview as well as information on program participants, evaluation methods, key evaluation findings, probable implementers, funding, implementation detail, and issues to consider. Example sites, contact information, a list of resources, and a bibliography are also available at http://www.promisingpractices.net/program.asp?programid=88&ref=ppntext.

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2. CHILDREN'S DEFENSE FUND RELEASES REPORT ON KEY CHILD DATA

State of America's Children 2008 is a statistical compendium of national and state-by-state data on children. The report, published by the Children's Defense Fund, also includes comparisons of selected child statistics from the United States and other industrialized countries. Topics include child population, poverty and income, poverty and race, health and health coverage, welfare, youths at risk, education, child care and early childhood development, nutrition, and housing. The press release, highlights, and full report are available at
http://www.childrensdefense.org/site/PageServer?pagename=policyareas_stateamericaschildren_2008.

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3. WEB PAGE HIGHLIGHTS INFORMATION ON HEALTH ISSUES COLLECTED BY THE NATIONAL CONFERENCE OF STATE LEGISLATURES

Health Policy Issues at NCSL, A-Z, presents information on state and federal health issues studied and tracked by health programs and staff at the National Conference of State Legislatures (NCSL). The A-Z list provides access to information on legislative action in the states, research and the effects on public policy, and state innovations by topic. Each topic links to NCSL legislative reports and other publications, presentation slides, audio conferences, and summaries of past and upcoming meetings, as well as to non-NCSL publications, articles, and communications. Some topics also link to an index of articles published in NCSL's State Health Notes. The A-Z list is available at http://www.ncsl.org/programs/health/healthissues.htm.

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4. AUTHORS EXAMINE HEALTH CARE ASPECTS OF TRANSITION TO ADULTHOOD FOR YOUTH WITH SPECIAL HEALTH CARE NEEDS

"Solutions to improving the preparation for transition [to adulthood] are needed at the patient and family, provider, and health system levels," state the authors of an article published in the January 2009 issue of Pediatrics. The Title V program of the Social Security Act, administered by the Maternal and Child Health Bureau (MCHB), provides funding for specialized medical services for children with a range of conditions and guidance to states on improving systems of care for children and youth with special health care needs (CYSHCN). MCHB has made the preparation for adulthood one of six core performance outcomes, which together define a high-performing system of care for CYSHCN. Two national surveys have been conducted to assess state and national progress toward meeting core performance outcomes from families’ perspectives. The first National Survey of Children with Special Health Care Needs (NS-CYSHCN) was conducted in 2001 and the second in 2005-2006. This article describes changes to the measurement strategy for the transition core outcome since the 2001 survey and reports national results on the transition core outcome and its individual components using the 2005-2006 survey data. The authors also identify factors associated with meeting the core outcome and its components and discuss implications of the results for federal and state planning and policy.

A total of 40,723 interviews with parents of CYSHCN were completed during 2005-2006, including 18,198 with parents of youth with special health care needs (YSHCN) ages 12-17. Parents of children without special health care needs were surveyed for comparison, with a total of 1,862 parents of youth ages 12-17 responding to the entire survey. The transition core outcome was calculated on the basis of the following component measures: parent report of transition-related discussions with their child’s health professionals about shifting to adult health professionals, adult health care needs, and health insurance and parent report that the child’s health professional usually or always encouraged the child to take responsibility for his or her care. All components were required to meet the overall core outcome.

The authors found that
"As in 2001, performance on the transition core outcome trails that of the other MCHB outcome measures," the authors conclude, suggesting that addressing “disparities in transition services is a high priority.”

Lotstein DS, Ghandour R, Cash A, et al. 2009. Planning for health care transitions: Results from the 2005-2006 National Survey of Children with Special Health Care Needs. Pediatrics 123(1):e145-e152. Abstract available at http://pediatrics.aappublications.org/cgi/content/abstract/123/1/e145.

Readers: More information is available from the following MCH Library resource:

- Children and Adolescents with Special Health Care Needs: Knowledge path at
http://www.mchlibrary.info/KnowledgePaths/kp_CSHCN.html

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MCH Alert © 1998-2009 by National Center for Education in Maternal and Child Health and Georgetown University. MCH Alert is produced by Maternal and Child Health Library at the National Center for Education in Maternal and Child Health under its cooperative agreement (U02MC00001) with the Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services. The Maternal and Child Health Bureau reserves a royalty-free, nonexclusive, and irrevocable right to use the work for federal purposes and to authorize others to use the work for federal purposes.
 
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