MCH Alert: Focus on Infant Mortality


Maternal and Child Health Library

MCH Alert: Focus on Infant Mortality is developed by the Maternal and Child Health Library in collaboration with the National Sudden and Unexpected Infant/Child and Pregnancy Loss Resource Center at Georgetown University. This and past issues are available online at http://www.mchlibrary.info/alert/archives.html and http://www.sidscenter.org/alert/archives.html.


March 27, 2009

Special Notice: Sudden Unexpected Infant Death: National Developments, Initiatives, Studies, and Opportunities (a Maternal and Child Health Bureau-sponsored Webcast) will be held on Monday, March 30, 2009, from 2:00 p.m. to 3:30 p.m., ET. Registration is open to the maternal and child health community. More information is available at http://www.mchcom.com/liveWebcastDetail.asp?leid=381. Video and audio archives will be available shortly after the event at http://webcast.hrsa.gov/Postevents/recentEvents.asp.

1. Resource Center Updates Parent Brochure on Infant Sleep
2. Program Updates Bibliography on Grief and Bereavement
3. Article Investigates Characteristics of Siblings of Children with Fetal Alcohol Syndrome or Incomplete Fetal Alcohol Syndrome
4. Authors Explore the Dentist's Role in Recognizing and Treating Sleep-Disordered Breathing in Children with Down Syndrome

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1. RESOURCE CENTER UPDATES PARENT BROCHURE ON INFANT SLEEP

Helping Baby "Back to Sleep" encourages parents to place infants (under age 1) on their backs for sleep and explains why back sleeping helps lower an infant's risk for sudden infant death syndrome. The new brochure, produced by the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center at Georgetown University updates the 2007 version developed by Circle Solutions. Contents include tips for parents on helping infants fall asleep, what to do when they roll over during sleep, and how to return them to sleep if they awaken during the night. Other tips include how to create a safe sleep environment and the importance of "tummy time" when infants are awake during the day. Contact information for the resource center and partner organizations is provided. The brochure is available at
http://www.sidscenter.org/documents/SIDRC/BackToSleep.pdf.

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2. PROGRAM UPDATES BIBLIOGRAPHY ON GRIEF AND BEREAVEMENT

Annotated Bibliography on Grief and Bereavement Following Pregnancy Loss, Perinatal and Infant Death cites references from the published literature for the period 2001-2008. The updated bibliography, produced by the National Fetal and Infant Mortality Review Program and the Association of SIDS and Infant Mortality Programs, includes citations drawn from a search of PubMed and CINAHL Plus using the terms grief, bereavement, perinatal loss, and infant death. Content is organized into the following categories: research articles, practice recommendations, and systematic literature reviews. The bibliography is available at http://www.acog.com/departments/nfimr/bereavementLiterature3-07.pdf.

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3. ARTICLE INVESTIGATES CHARACTERISTICS OF SIBLINGS OF CHILDREN WITH FETAL ALCOHOL SYNDROME OR INCOMPLETE FETAL ALCOHOL SYNDROME

"Siblings of children with FAS [fetal alcohol syndrome] and incomplete FAS have health, learning, and social needs," write the authors of an article published in the March 2009 issue of Pediatrics. FAS is the most common cause of preventable mental retardation in the United States. The study described in this article sought to determine whether American Indian siblings born just before a child with FAS have enough characteristics of FAS that one could predict that the next child would have FAS.

Children with FAS or incomplete FAS were identified between 1981 and 1993 at four Northern Plains Indian Health Services hospitals or clinics. Children with FAS (referred to as "study 1 siblings") were defined as those who met all five FAS criteria: (1) prenatal alcohol exposure or maternal history of alcohol consumption, (2) FAS diagnosed or noted as suspected by a physician, (3) one or more facial feature characteristics of FAS, (4) a growth deficiency, and (5) central nervous system (CNS) impairment. Children with incomplete FAS (referred to as "study 2 siblings") were defined as those who met only one to four of the five criteria. "Before" siblings were those born just before a sibling with FAS or incomplete FAS, and "after" siblings were those born just afterwards.

The authors found that
The authors conclude that "support services for pregnant women are needed to prevent alcohol use during pregnancy for the health and well-being of the mothers and their children."

Kvigne VL, Leonardson GR, Borzelleca J, et al.  2009. Characterists of children whose siblings have fetal alcohol syndrome or incomplete fetal alcohol syndrome. Pediatrics 123 (3):e526-e533. Abstract available at http://www.pediatrics.org/cgi/content/full/123/3/e526.

Readers: More information is available from the following MCH Library resource:

- Preconception and Pregnancy: Knowledge Path at
http://www.mchlibrary.info/KnowledgePaths/kp_pregnancy.html

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4. AUTHORS EXPLORE THE DENTIST'S ROLE IN RECOGNIZING AND TREATING SLEEP-DISORDERED BREATHING IN CHILDREN WITH DOWN SYNDROME

"Oral health professionals may be in a unique position to recognize sleep-disordered breathing and screen for it in children with DS [Down syndrome]," state the authors of an article published in the March 2009 issue of the Journal of the American Dental Association. Sleep-disordered breathing has been found to occur in 50-80 percent of children with Down syndrome (DS). However, in many children, the association between DS and sleep-disordered breathing may go unrecognized by parents and health professionals. Obstructive sleep apnea (OSA), characterized by episodic obstruction of the upper airway during sleep, results in hypoxemia (insufficient oxygenation of the blood) and frequent arousals; it is associated with symptoms such as snoring and excessive daytime sleepiness. The treatment approach for children has focused on surgical options such as tonsillectomy and adenoidectomy, but research has shown that OSA in children with DS often persists even after surgery. Some clinicians recommend the use of oral appliances and other surgical approaches, which require the collaboration of health professionals in several disciplines. The authors of the article discuss the clinical features of DS and association with OSA, recognition of OSA, and the role for oral devices. Topics include terms and definitions, medical history and anatomical considerations for oral health professionals suspecting sleep-disordered breathing, screening children for OSA (e.g., quantifying excessive daytime sleepiness), and severity of OSA and treatment.

The authors conclude that
Waldman HB, Hasan FM, Perlman S. 2009. Down syndrome and sleep-disordered breathing: The dentist's role. Journal of the American Dental Association 149(3):307-312. Abstract available at http://jada.ada.org/cgi/content/abstract/140/3/307.

Readers: More information is available from the following MCH Library resources:

- Children and Adolescents with Special Health Care Needs: Knowledge Path at
http://www.mchlibrary.info/KnowledgePaths/kp_CSHCN.html

- Oral Health for Infants, Children, Adolescents, and Pregnant Women: Knowledge Path at
http://www.mchlibrary.info/KnowledgePaths/kp_oralhealth.html

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MCH Alert © 1998-2009 by National Center for Education in Maternal and Child Health and Georgetown University. MCH Alert: Focus on Infant Mortality is produced by Maternal and Child Health Library at the National Center for Education in Maternal and Child Health at Georgetown University under its cooperative agreements (U02MC00001 and U48MC08717) with the Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services. The Maternal and Child Health Bureau reserves a royalty-free, nonexclusive, and irrevocable right to use the work for federal purposes and to authorize others to use the work for federal purposes.
 
Permission is given to forward MCH Alert, in its entirety, to others. For all other uses, requests for permission to duplicate and use all or part of the information contained in this publication should be sent to mchalert@ncemch.org.

The editors welcome your submissions, suggestions, and questions. Please contact us at the address below.

MANAGING EDITOR: Jolene Bertness
CO-EDITOR: Tracy Lopez
COPYEDITOR/WRITER: Ruth Barzel
LIST ADMINISTRATOR: Beth DeFrancis Sun

MCH Alert
Maternal and Child Health Library
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