
Maternal and Child Health Library
MCH Alert: Focus on Infant Mortality is developed by the Maternal
and Child Health Library in collaboration with the National Sudden
and Unexpected Infant/Child and Pregnancy Loss Resource Center at
Georgetown University. This
and past issues are available online
at http://www.mchlibrary.info/alert/archives.html and http://www.sidscenter.org/alert/archives.html.
March 27, 2009
Special Notice: Sudden Unexpected Infant Death: National
Developments, Initiatives, Studies, and Opportunities (a Maternal and
Child Health Bureau-sponsored Webcast) will be held on Monday, March
30, 2009, from 2:00 p.m. to 3:30 p.m., ET. Registration is open to the
maternal and child health community. More information is available at http://www.mchcom.com/liveWebcastDetail.asp?leid=381.
Video and audio archives will be available shortly after the event at http://webcast.hrsa.gov/Postevents/recentEvents.asp.
1. Resource Center Updates Parent Brochure on Infant Sleep
2. Program Updates Bibliography on Grief and Bereavement
3. Article Investigates Characteristics of Siblings of
Children with Fetal Alcohol Syndrome or Incomplete Fetal Alcohol
Syndrome
4. Authors Explore the Dentist's Role in Recognizing and
Treating Sleep-Disordered Breathing in Children with Down Syndrome
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1. RESOURCE CENTER UPDATES PARENT BROCHURE ON INFANT SLEEP
Helping Baby "Back to Sleep" encourages parents to place infants (under
age 1) on their backs for sleep and explains why back sleeping helps
lower an infant's risk for sudden infant death syndrome. The new
brochure, produced by the National Sudden and Unexpected Infant/Child
Death and Pregnancy Loss Resource Center at Georgetown University
updates the 2007 version developed by Circle Solutions. Contents
include tips for parents on helping infants fall asleep, what to do
when they roll over during sleep, and how to return them to sleep if
they awaken during the night. Other tips include how to create a safe
sleep environment and the importance of "tummy time" when infants are
awake during the day. Contact information for the resource center and
partner organizations is provided. The brochure is available at
http://www.sidscenter.org/documents/SIDRC/BackToSleep.pdf.
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2. PROGRAM UPDATES BIBLIOGRAPHY ON GRIEF AND BEREAVEMENT
Annotated Bibliography on Grief and Bereavement Following Pregnancy
Loss, Perinatal and Infant Death cites references from the published
literature for the period 2001-2008. The updated bibliography, produced
by the National Fetal and Infant Mortality Review Program and the
Association of SIDS and Infant Mortality Programs, includes citations
drawn from a search of PubMed and CINAHL Plus using the terms grief,
bereavement, perinatal loss, and infant death. Content is organized
into the following categories: research articles, practice
recommendations, and systematic literature reviews. The bibliography is
available at http://www.acog.com/departments/nfimr/bereavementLiterature3-07.pdf.
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3. ARTICLE INVESTIGATES CHARACTERISTICS OF SIBLINGS OF CHILDREN WITH
FETAL ALCOHOL SYNDROME OR INCOMPLETE FETAL ALCOHOL SYNDROME
"Siblings of children with FAS [fetal alcohol syndrome] and incomplete
FAS have health, learning, and social needs," write the authors of an
article published in the March 2009 issue of Pediatrics. FAS is the
most common cause of preventable mental retardation in the United
States. The study described in this article sought to determine whether
American Indian siblings born just before a child with FAS have enough
characteristics of FAS that one could predict that the next child would
have FAS.
Children with FAS or incomplete FAS were identified between 1981 and
1993 at four Northern Plains Indian Health Services hospitals or
clinics. Children with FAS (referred to as "study 1 siblings") were
defined as those who met all five FAS criteria: (1) prenatal alcohol
exposure or maternal history of alcohol consumption, (2) FAS diagnosed
or noted as suspected by a physician, (3) one or more facial feature
characteristics of FAS, (4) a growth deficiency, and (5) central
nervous system (CNS) impairment. Children with incomplete FAS (referred
to as "study 2 siblings") were defined as those who met only one to
four of the five criteria. "Before" siblings were those born just
before a sibling with FAS or incomplete FAS, and "after" siblings were
those born just afterwards.
The authors found that
- Study 1 before and after siblings had an average of 2.0 FAS
criteria, whereas study 2 before and after siblings had an average of
1.2 FAS criteria.
- Compared with control siblings, the 39 study 1 before and after
siblings had more facial features characteristic of FAS (23.1 percent
and 16.7 percent, respectively), growth delay (38.5 percent and 10.0
percent), CNS impairment (48.7 percent and 33.3 percent), maternal
alcohol history (82.1 percent and 76.7 percent), and prenatal alcohol
exposure (45 percent and 40.9 percent) and were diagnosed more often
with FAS by physicians (25 percent and 13.6 percent).
- Compared with control siblings, study 1 before and after siblings
had significantly lower mean birthweight, length, and head
circumference, as well as postnatal growth delay in height, weight, and
head circumference. Study 1 after siblings had significantly lower mean
gestational age at birth than controls and study 2 after siblings.
Study 1 after siblings had significantly lower birthweight, smaller
birth head circumference, and smaller postnatal head circumference than
study 2 after siblings.
- Dysmorphic facial features were reported more often for both the
study 1 before and after siblings, compared with controls.
- Compared with controls, before siblings had numerous CNS
impairments, including behavior problems, developmental delays, speech
and language delays, microcephaly, seizures, and ptosis.
The authors conclude that "support services for pregnant women are
needed to prevent alcohol use during pregnancy for the health and
well-being of the mothers and their children."
Kvigne VL, Leonardson GR, Borzelleca J, et al. 2009.
Characterists of children whose siblings have fetal alcohol syndrome or
incomplete fetal alcohol syndrome. Pediatrics 123 (3):e526-e533.
Abstract available at http://www.pediatrics.org/cgi/content/full/123/3/e526.
Readers: More information is available from the following MCH Library
resource:
- Preconception and Pregnancy: Knowledge Path at
http://www.mchlibrary.info/KnowledgePaths/kp_pregnancy.html
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4. AUTHORS EXPLORE THE DENTIST'S ROLE IN RECOGNIZING AND TREATING
SLEEP-DISORDERED BREATHING IN CHILDREN WITH DOWN SYNDROME
"Oral health professionals may be in a unique position to recognize
sleep-disordered breathing and screen for it in children with DS [Down
syndrome]," state the authors of an article published in the March 2009
issue of the Journal of the American Dental Association.
Sleep-disordered breathing has been found to occur in 50-80 percent of
children with Down syndrome (DS). However, in many children, the
association between DS and sleep-disordered breathing may go
unrecognized by parents and health professionals. Obstructive sleep
apnea (OSA), characterized by episodic obstruction of the upper airway
during sleep, results in hypoxemia (insufficient oxygenation of the
blood) and frequent arousals; it is associated with symptoms such as
snoring and excessive daytime sleepiness. The treatment approach for
children has focused on surgical options such as tonsillectomy and
adenoidectomy, but research has shown that OSA in children with DS
often persists even after surgery. Some clinicians recommend the use of
oral appliances and other surgical approaches, which require the
collaboration of health professionals in several disciplines. The
authors of the article discuss the clinical features of DS and
association with OSA, recognition of OSA, and the role for oral
devices. Topics include terms and definitions, medical history and
anatomical considerations for oral health professionals suspecting
sleep-disordered breathing, screening children for OSA (e.g.,
quantifying excessive daytime sleepiness), and severity of OSA and
treatment.
The authors conclude that
- Oral health professionals should recognize the impact of sleep
impairment and the need for diagnostic testing to confirm suspicions
when evaluating a child's breathing management.
- Oral health professionals should collaborate with a physician who
is a sleep specialist and with the child's primary physician when
evaluating and treating children with DS and OSA.
Waldman HB, Hasan FM, Perlman S. 2009. Down syndrome and
sleep-disordered breathing: The dentist's role. Journal of the American
Dental Association 149(3):307-312. Abstract available at http://jada.ada.org/cgi/content/abstract/140/3/307.
Readers: More information is available from the following MCH Library
resources:
- Children and Adolescents with Special Health Care Needs: Knowledge
Path at
http://www.mchlibrary.info/KnowledgePaths/kp_CSHCN.html
- Oral Health for Infants, Children, Adolescents, and Pregnant Women:
Knowledge Path at
http://www.mchlibrary.info/KnowledgePaths/kp_oralhealth.html
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MCH Alert © 1998-2009 by National Center for Education in Maternal
and
Child Health and Georgetown University. MCH Alert: Focus on Infant
Mortality is produced by
Maternal and Child Health Library at the National Center for Education
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